Pixabay

Meaning. True meaning. And Covfefe. Capturing the words we say or write down and how they fit in with our everyday lived experience is changing. A long time ago, I learned that the lower the ‘n’ value (the number of subjects in a given study or analysis), the worse the likelihood of reproducibility, and that n=1 studies are meaningless, instantly dismissible. Don’t even read on if you see ‘n=1’, you are wasting your time. Whilst this holds for most types of research, what if n=1 is an interview, or a narrative account that makes history or closely aligns with our own or even wider societal experiences, and how we make sense of the world? What if it qualitatively analyses and interprets each word, and deduces new meaning or future research questions and trends? The Frost-Nixon interviews are a series of n=1, for instance, but every line, every word spoken has been analyzed and transcribed for posterity, and remains relevant to this day. What if it is a letter of note, from one person to another, that affects us all? Or a blog, or a podcast, or a video?

“我们在生活中一直与癌症现实相处已有近5年……这成为了新的常态”
凯特·格兰杰（Kate Granger MBE）博士

The article by Claudia Pagliari and Joanna Taylor published inBMC Palliative Careis not an interview, but a transcript of Twitter postings by the late凯特·格兰杰（Kate Granger）博士。凯特和我在Twitter见面后一起研究了一些项目，我也很幸运见到她的丈夫克里斯·波特顿（Chris Pointon）#HelloMyNameIs井号。如此多的人对凯特的推文做出了反应，凯特的推文借鉴了她作为医生的经历，以及她进入生命终止护理领域时对患者世界的创造。我挑战您查看她的Twitter页面，而不是收集一些新的理解，或者与她的观点和观点联系在一起。她对尊重和真正的共同决策的追求是非凡而顽强的。

这项研究着眼于每条推文，将其分为不同的主题，并在凯特（Kate）生命的最后6个月中分析内容（定性内容分析），并将其与寿命终止护理轨迹联系起来。它还探索并讨论了社交媒体数据对了解患者的个人经历和应对策略的价值。作者为这一事实提供了几次歉意，这是对其中一项的研究，其中包括冗长的“限制”部分，反映了研究对这种新型分析的“快速对手”的态度。社交媒体的世界是原始的，不过滤的，不礼貌的，有时是歇斯底里的，因此与更传统，精心准备和音频录制的定性访谈截然不同。研究人员可以在这里找到一些真正令人着迷的见解，并且不应让他们的同龄人缺乏想象力或经验阻止他们踏入竞争。

“我对“勇敢”感到筋疲力尽，这是我'凯特·格兰杰（Kate Granger）博士的期望，因此可以应付任何事情。我不能……”
凯特·格兰杰（Kate Granger MBE）博士

The result is a window into an individual’s experiences, including at highly emotional and sensitive stages, something that is not afforded to research in many other settings. One of my first queries was the issue of consent, but the authors had talked to her husband Chris and asked him permission to use Kate’s openly available Twitter data. I know of social media research where this has not happened, and ethically it raises an issue of consent for me. Interestingly, some researchers I discuss this with seem to believe that any openly available social media data is ‘fair research game’. Many ethics committees I have talked to remain under prepared for this important question.

克里斯·波顿（Chris Pointon）同意这项工作，知道凯特（Kate）本来会受到荣誉和谦卑。凯特（Kate）的巨大动力和决心继续前进，您会看到敬畏地写着痛苦的推文。这个非常特殊的n = 1是否可以成为我们刚刚开始理解的社交媒体叙事分析趋势的一部分？未来已经存在的人工智能算法的未来版本，例如深度学习，可能会迅速数据，数百万，数十亿，这类丰富的主题句子，以帮助产生和帮助实际的现实生活决策，以支持姑息治疗和终结。我们看到历史记录的方式发生了重大变化。过去的经验用于为子孙后代的决策参数提供信息，可能会考虑到Twitter乃至互联网上写过的每个句子。无论这是您的噩梦的想法，还是您认为这是一个巨大的机会，都会在一段时间内继续划分意见。