Rare Disease Day 2022: how can we improve research in rare diseases?
In a blog for Rare Disease Day 2022, Cheney Drew discusses the DOMINO-HD study, registered at the ISRCTN registry, which aims to provide new insights…Read more »
In a blog for Rare Disease Day 2022, Cheney Drew discusses the DOMINO-HD study, registered at the ISRCTN registry, which aims to provide new insights…Read more »
The last day of February marks Rare Disease Day, an initiative that helps increase education, discussion, and improve access to treatment options.…Read more »
Benoit Coulombe和Marie-Soleil Gauthier Montreal Clinical Research Institute (Montréal, Canada), discuss the Rare…Read more »
The last day of February marks Rare Disease Day, an initiative that helps increase education, discussion, and improve access to…Read more »
This piece, our final runner-up entry in Findacure and Medics4RareDiseases' "Student Voice" contest, speaks to the need to…Read more »
The diagnosis and delivery of treatment for rare diseases can vary greatly between different populations or groups within the same…Read more »
This piece, a runner-up entry in Findacure and Medics4RareDiseases' "Student Voice" contest, explores how current methods of…Read more »
As it does every year, Orphanet Journal of Rare Diseases is proud to partner with Findacure in its Student Voice essay contest.…Read more »
Rare Disease Day occurs annually, on the last day of February. It is an awareness day meant to increase cognizance and spark…Read more »
As it does every year, Orphanet Journal of Rare Diseases partnered with Findacure in its Student Voice essay contest. The overall…Read more »